Today I received my scan results,I've had many of these days and I can honestly say they do not get any easier. Several sleepless nights leading upto today no matter what you do and how busy you keep yourself it's still all you think about mostly fearing the worst. Another afternoon appointment but luckily we didn't have long to wait, 'I'm pleased with the scan' the first words that I heard, Jo then went onto say that although some growth in areas,there's no new disease and it's all stable. Phew.... I was so worried due to the increased pain I've been having. This is what I hoped as it means I can carry on having treatment and hope it will continue to slow down the growth. Can you believe that it's almost a year ago when I started this treatment? ....no me neither!. So for now I'll keep plodding on, I'll have a scan in may and hope for the same result. I feel so lucky that I'm here to spend another Christmas with my wonderful family. Thank you to all who's sent me well wishes throughout the year and I wish you all a merry Christmas 2016.
Lots of love Julie xxx
(Sorry for any spelling mistakes,I'm half asleep!)
Tuesday 13 December 2016
Thursday 21 July 2016
Scan results
It was 2 days ago scan results day,the worrying doesn't get easier, it was an afternoon appointment so in the morning I kept busy cleaning the house. We arrived at the hospital, didn't have too long to wait to get called in, after the usual how are you Jo went on to say the scan had shown growth in all the tumours even the few in my liver had grown,really dissapointed not what I wanted to hear. now my options are carry on with chemo and just hope after more it will slow down or stop the growth of them but no doubt this is slowing down the healing of my leg or stop chemo but if I stop then I can't have more chemo (the rules of the drugs fund). The room went silent as we all looked at each other, I don't have any other choice than continue with the chemo, so that's the plan another 2 month of chemo then back to see Jo.
This means no holiday for me but I've finally convinced Chris to take Adam abroad for a week, he really needs a break and I hope it will do him good it's just what he needs, that's my mission today to find them a holiday where they can go and relax.
I had chemo yesterday think it was number 16 or maybe more I've lost count! I'm also back on antibiotics for my leg it's getting no better and I'm still in compression. As you can imagine with all that's going on I'm not feeling too happy, I'm trying to stay positive but it's so difficult when you hear news you don't want to hear.
Love Julie xx
This means no holiday for me but I've finally convinced Chris to take Adam abroad for a week, he really needs a break and I hope it will do him good it's just what he needs, that's my mission today to find them a holiday where they can go and relax.
I had chemo yesterday think it was number 16 or maybe more I've lost count! I'm also back on antibiotics for my leg it's getting no better and I'm still in compression. As you can imagine with all that's going on I'm not feeling too happy, I'm trying to stay positive but it's so difficult when you hear news you don't want to hear.
Love Julie xx
Thursday 7 July 2016
Another day,another problem.
This week has been nothing but appointments,Monday morning visit to the nurse to get my leg cleaned and dressed, the dreaded scan in the afternoon. Tuesday- Macmillan unit for chemo bloods. Wednesday-long long day having chemo Thursday (today)-went to the nurse to get my leg cleaned & dressed leg is looking much better she doesn't think I'll be in compression much longer,my heel is still not good there's a pretty deep hole in my heel,they treat it with balm cream and a soft sponge dressing and hopefully once the compression is gone they'll be able to concentrate on getting my heel healed. Then the nurse noticed blood coming from the corner of my toe nail as she had a closer look she looked concerned as its very bruised too,she said she would send an urgent request to a chiropodist,before I got home I had the call from them,I have an appointment there today at 15:50 so I've that too look forward to! I'm exhausted today from chemotherapy yesterday it doesn't get any easier. I have my schedule of dates upto Jan 2017 and scan results on the 19th July I just hope & pray chemo is still keeping the tumours stable.
On Sunday it's that time of year again, race for life day I'll be doing most of it in my wheelchair and I'll walk what I can. A lovely/emotional day with my family & friends expecially my dear Mavis (Clair) who's done it by my side every year and taking part for me one year when I was too ill to take part. I feel so lucky to have her as a friend. Also I thank all who's sponsored me so many kind people I hope it will all help to find the cure that's so desperately needed,I know I'll never be cured from this dreadful disease, but as long as chemo keeps thing stable then I hope to have many more years ahead to enjoy seeing my beautiful children grow up into adults and grow older & greyer with Chris! that's all I wish for.
Love always Julie
Xx
On Sunday it's that time of year again, race for life day I'll be doing most of it in my wheelchair and I'll walk what I can. A lovely/emotional day with my family & friends expecially my dear Mavis (Clair) who's done it by my side every year and taking part for me one year when I was too ill to take part. I feel so lucky to have her as a friend. Also I thank all who's sponsored me so many kind people I hope it will all help to find the cure that's so desperately needed,I know I'll never be cured from this dreadful disease, but as long as chemo keeps thing stable then I hope to have many more years ahead to enjoy seeing my beautiful children grow up into adults and grow older & greyer with Chris! that's all I wish for.
Love always Julie
Xx
Sunday 19 June 2016
Chemotherapy
It's been a while since my last blog post,so thought I'd update on how things are. Well I had the port put in my chest a few days before Christmas then chemo started the day after I felt OK with it until Christmas Day I was unwell I struggled on until 4pm then I went to bed. Before I knew it it was chemo day again after a few more doses it was my skin that suffered my fingers & toes they became terribly sore, it was decided chemo would be put on hold until they improved and I was given creams,I then got an infection in both my big toes I went to my GP and was given antibiotics but the day after I got worse so Chris took me to hospital where I was given iv antibiotics luckily it was a short stay as I began to feel better but had to return the day after for an ultrasound of my leg to check for blood clots,luckily no clots...phew!
As my skin got better I started chemo again,it was decided to lower the dose by 50%,then it was the dreaded scan day and the wait for results it was chemo day when we got the results,a mixed picture in that there are some areas that have improved and others that look stable but certainly there is no evidence of progression,we were very happy with that as we were told the 20% chance that the chemo would work so the plan is to increase the dose to 75% and carry on.
Then came along another problem a leg ulcer and a nasty one at that,once again chemo was on hold while I had a week of antibiotics it seemed to improve,chemo carried on again! I was visiting my nurse at gp surgery twice a week for it cleaning,I wasn't getting anywhere once again I was back on antibiotics they didn't help much. My oncologist asked what do we do carry on with chemo when we know it's working or stop chemo and get the leg better as the chemo was slowing down the healing,without any doubt in my mind it was carry on with chemo. After 7 long weeks my leg was no better,I finally got referred to the limb clinic where they did a Doppler test,now my leg is wrapped with a 3 layer compression bandage it's still not looking good and also discovered a deep cut on my heel so that's getting cleaned & dressed too. I'm back at the district nurse in the morning for them cleaning & fresh dressing and that will continue for twice a week not sure how long for I seem to be getting nowhere fast. Chemotherapy Wednesday think this one will be number 15. 4th July is dreaded scan day again & results on the 19th July,fingers crossed treatment will still be working and I'm hoping for a break so we can get away on holiday in August. Will keep you posted on the results of the scan. Thank you for your continued support.
Julie xxx
As my skin got better I started chemo again,it was decided to lower the dose by 50%,then it was the dreaded scan day and the wait for results it was chemo day when we got the results,a mixed picture in that there are some areas that have improved and others that look stable but certainly there is no evidence of progression,we were very happy with that as we were told the 20% chance that the chemo would work so the plan is to increase the dose to 75% and carry on.
Then came along another problem a leg ulcer and a nasty one at that,once again chemo was on hold while I had a week of antibiotics it seemed to improve,chemo carried on again! I was visiting my nurse at gp surgery twice a week for it cleaning,I wasn't getting anywhere once again I was back on antibiotics they didn't help much. My oncologist asked what do we do carry on with chemo when we know it's working or stop chemo and get the leg better as the chemo was slowing down the healing,without any doubt in my mind it was carry on with chemo. After 7 long weeks my leg was no better,I finally got referred to the limb clinic where they did a Doppler test,now my leg is wrapped with a 3 layer compression bandage it's still not looking good and also discovered a deep cut on my heel so that's getting cleaned & dressed too. I'm back at the district nurse in the morning for them cleaning & fresh dressing and that will continue for twice a week not sure how long for I seem to be getting nowhere fast. Chemotherapy Wednesday think this one will be number 15. 4th July is dreaded scan day again & results on the 19th July,fingers crossed treatment will still be working and I'm hoping for a break so we can get away on holiday in August. Will keep you posted on the results of the scan. Thank you for your continued support.
Julie xxx
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