Too much pain!!

Where to start! Since my last update I’ve had a  problem with pain & lots of it. Having to call the palliative care team (my nurse H) I was referred to a consultant at our local hospice who then referred me to the the pain clinic where I saw a doctor who offered to give me a nerve block injection into my pelvis in the hope this would help ease the pain. 3 week ago I went in and had the injection it was a straight forward procedure and was thinking positive that in a few days time I would be ‘pain free’ I couldn't have been more wrong,the day after I had the same amount of pain,by Friday evening the pain was horrendous this continued until Monday,my mum had to call for my nurse,within the hour she was at my house,on the phone to the doctor arranging stronger pain relief,the extra medicines took that edge of the pain but by Wednesday I was in agony pain scoring 10 top of the chart so my mum called the nurse out again,we had to get Chris home too something I don’t like having to do but I was screaming in agony nothing I took touched the pain. The nurse got here just as the pain was easing to about a 7/10, more increased meds and she spoke to the doctor who had done the nerve block and he reviewed the X-rays and noted bruising & inflammation, this could be the reason for the increase in pain. We spoke about if things didn’t settle down I’ll be admitted to the hospice for 7 days for pain control so they could monitor it 24/7, not a route I wanted to take but I’m prepared to do anything so I have some relief from pain. Over the next few days pain was on & off and we spoke about going back to the pain clinic to see if the doctor could do anything else for me. Yesterday was my appointment and I decided to go for the nerve block again,although feeling nervous as I don’t want to suffer that much pain again but I’d rather try this then we still have the hospice option left open if I need to go in. No date yet for the procedure and the last few days the pain has been much easier on & off. 

I’m still having chemo every 2 weeks,I have a scan mid November and I’m back to see jo early December. The last scan showed the pelvic tumours were ‘stable’ but the pesky lung had growth, I’m hoping next time we see jo she’ll have a plan to tackle the lung. 

I’ll update once we’ve had the results. 

Thank you Julie xx